Wednesday, May 13, 2009

Revelation

So last night I stop by my sister's house and we were talking about the Buddy Walk. So my six year nephew pipes in and says "Aunt Karen is Alexander the only person I know with Down Syndrome." My sister said "did you hear him "and I was like "yeah." And then she says "yeah he's the only one you know." I was like Tyler "do you know what Down Syndrome even means." He was like "ah yeah he was born with it." He answered me like I thought he was stupid or something. :) I was like "yeah your right he was born with it but do you know what else." He was like no. Then my sister went on to say "remember sometimes it takes him longer to learn things." He was oh yeah!

Well if you don't know Tyler he is very FUN to be around and life is always a party. I can already tell that he will never think anything is wrong with our precious little angel. I already know he is going to be his little protector when Alexander gets a little older. I just thought it was sweet hearing from a six year what Down Syndrome actually meant and thought I would share.

We have a stair climber!!!

Yes that is right, we have a stairclimber in our mist. :) We have been working on crawling up our stairs since last summer and now he can finally do it. I guess I can't leave him at the bottom of the stairs when I run up stairs real quick anymore. He has been working really hard at this the past couple weeks and was having trouble with the first couple steps but now we're finally there. Last night that's all he wanted to do - may I add he was worn out and in bed early. Yeah for AJ we are so excited for you, now you just need to walk without momma and dada's help!

Tuesday, May 5, 2009

GREAT NEWS!

Alexander and I went to the ENT and the cardiologist today. At the ENT he had a hearing test done and they said his hearing is now excellent. Also the tubes are in nicely and there is no icky wax. When we had the hearing test in October it wasn't as good. Boy do tubes make a world of a difference.

We also went to see Dr. Sharkey our cardiologist today. She said his scar looks great and that his heart looks great on the echo. Their is still a little leakage on his mitral valve so we are going to stay on his medicine - enalapril. Enalapril is actually blood pressure medicine.

Also the bump on his chest will eventually go away when he grows taller she said. I know many people always question it. It is where they broke his sternum and when it grew back it didn't form correctly. She said it is very common and when he grows it will flatten out. Yeah!

But the great news is that we don't have to go back to both doctors for a whole year!!! YEAH!!!